My Chileda Story – Carrie

By Tina M
November 19th

Submitted by Carrie McIntyre, Former Chileda Employee

Hello! My name is Carrie McIntyre and I was an employee and the substitute leisure arts teacher for awhile at Chileda from 2011-2012. Though my time was brief, because I moved to Minnesota, I just wanted to give a quick shout out to how Chileda impacted my life greatly!

image of woman playing guitarI received my undergraduate degree with a double major of Theater and Vocal Performance with a music minor. When I moved to Wisconsin from Seattle I was looking for a job and answered the one I found in the paper for Chileda. At that point in time I was a working musician and taught lessons to children but mostly neruo-typical children. I had never given adaptive lessons before or worked with any children on the spectrum. So I was a little nervous when starting. I immediately fell in love and realized I had a gift of using music to connect with those kiddos. It was such an amazing experience that when I moved to Minneapolis I became a certified ABA Behavioral Therapist which then prompted me to my next chapter where I’m at now. I’m currently a Graduate Student at Colorado State University receiving my masters in Music Therapy with a concentration in ASD and early childhood. I would have never imagined ten years ago I’d be here.

Chileda played a huge part in showing me my true path to go down and I just wanted to give a huge thank you to everyone involved at this amazing place! Thank you so much.

Are you interested in earning your undergraduate or graduate degree? Chileda recently partnered with Purdue University Global! As part of this partnership, all Chileda employees and their immediate family members (spouses, domestic partners, parents, siblings, and children) will be eligible for a 14% discount off published tuitions for graduate programs and certificates and a 20% discount off tuition for undergraduate programs at Purdue University Global, Inc. Visit www.PurdueGlobal.edu for available programs.

Would you like to join the Chileda team? Check out our Employment page for available positions. Help us change lives!

Sibshops

By Tina M
November 12th

Sibshops are presented by The Chileda Development and Learning Center in partnership with the Down Syndome Association of Wisconsin

What is a Sibshop?
A Sibshop is an opportunity for brothers and sisters (ages 7-12) of kids with special needs to come together and receive support from each other. Through activities, games and discussion, the youth receive support from their peers who may be experiencing similar feelings of having a sibling with special needs.

The Sibshop model uses many off beat games and activities interspersed with discussion and informational activities to provide siblings with information, support and a whole lot of fun!

*The Sibshop model takes a wellness approach. Although Sibshops may be therapeutic for some children, Sibshops are not considered therapy and should not replace any family or individual therapy already in place.

How are Sibshops run?
Sibshops are led by Chileda employees who are trained Sibshop facilitators. Volunteers assist with activities and provide a 1:2 adult to participant ratio. As often as possible, volunteers who have siblings with special needs are recruited to provide insight on what it is like to grow up with a sibling with special needs.

Upcoming Sibshops
December 14, 2019
January 25, 2020
March 7, 2020
April 18, 2020
May 30, 2020

Sibshops are held on Saturdays from 9:00 am to Noon at the Chileda Development and Learning Center (3716 Mormon Coulee Road, La Crosse)..
A fee of $10 covers the cost of a snack and materials for the event.

For registration information, please contact Karrie Zielke, MVR, MBA, The Director of Chileda Development and Learning Center.
karriez@chileda.org or 608.782.6408 ext. 368
________________________________________________________________________________

Jenna pictured at Chileda

“As a kid, it was hard to explain to friends what it was like to have a sister with autism and how that would affect us when they would come over to play. Most kids my age didn’t quite understand what it was like. So for my brother and I, going to Sibshops were a great way to talk to other kids that could relate to us and that had stories of their own to share.”
-Jenna Cavey, Behavior Specialist & Sibshop Facilitator

Making a Difference: Drew and Donna Sullivan

By Tina M
October 29th

Submitted by Maria Dresen, Noelle Hausen and Kristin Hartung (students in the “Digital Content Writing, Management, and Experience Design” Spring 2019 class at UW-La Crosse)

Donor Spotlight: Drew and Donna Sullivan have been long-time supporters of Chileda. We are so grateful for their kindness and benevolence. They have made a significant impact to helping fulfill our mission of improving the quality of life for youth with cognitive challenges and extraordinary behavioral needs. Thank you, Drew and Donna! We are humbled by your generosity.

“Chileda is responsible for the difference.”

That’s what Drew and Donna Sullivan would say if you asked them about the impact Chileda has on their lives. Their story shows the importance of Chileda’s mission and community support.

Drew and Donna were introduced to Chileda when their grandson, Keegan, could no longer live at home with his family in Texas. Keegan was diagnosed with severe Autism Spectrum Disorder at a young age and became so violent toward his siblings, his parents could no longer care for him. This led to a desperate search for a facility that could help Keegan. To their delight, Donna and Drew stumbled upon the solution in their own backyard; Chileda became Keegan’s new home. 

The progress Keegan experienced at Chileda was one of the couple’s main motivations for donating.

For a period of time, Keegan was a resident at Chileda who needed constant care. Because of our services, he was able to move from a residential student to our day services program. In addition, he can now better control his emotions, use more words, follow clear instructions, and express if he is upset or needs anything. Without Chileda, Keegan would have been put on the waiting list in his home state, or placed in a psychiatric institute. Now, he has transitioned to an adult group home that his family is comfortable with where he can grow old. 

To support their grandson, Drew and Donna donated to Chileda in various ways. They gave a monetary donation directed toward a break room for staff members, a safe space where they can set aside the stress of their positions. This has a positive impact on the students as well, as the space allows the staff to be better equipped to provide the students with the highest quality care. Drew is highly involved within Chileda by serving on the Board of Directors. Donna and her certified pet therapy dog have provided pet therapy for both Chileda residents and staff. Donna and Drew continue to devote their time, effort and money to our organization because they have witnessed how much our services can improve a family’s quality of life.

Our devoted team carries out our mission to teach students the valuable skills needed to become active in the community and improve a child’s quality of life.

Drew and Donna confirmed the devotion of our team explaining that, “their mission to take care of children…they live it, they breathe it, they wear it.”

Our mission is not solely an assortment of written words, but rather is lived out every day by all team members.

In order for our organization to continue serving our students, we are in need of community support. Through previous donations, we built two additional accessible playground structures to address students’ varied needs. Having a variety of playground structures helps students make more progress physically, academically and emotionally. The equipment provides access for those with limited mobility, including wheelchairs, and promotes group play.

Currently, we are raising funds for a Snoezelen Room for our students, a multi-sensory environment that will allow them to regulate their sensory input. If you are interested in supporting our work, please check out our donation page at http://chileda.org/donate/.

Inside the Snoezelen Room

By Tina M
June 14th

At Chileda, whether in our school or in their houses, our students can struggle processing all the sensory information around them.

Sights, smells, sounds and touch, all can become overwhelming, compelling our students to seek a place to relax and regulate. While we have designated spaces for the students to relax, we don’t have a Multi-Sensory Environment to help them regulate, at least not in the way the Snoezelen Room will.

One item on our wish list for the room is a large bubble tube, but it’s not like any other bubble tube you may have seen. From floor to ceiling, changing colors and different shapes swim through the tube, creating a calming effect that also helps with visual perception. The tube itself, begging to be touched, sends vibratory sensations through the user as they make contact with it and returning tactile stimulation.

The bubble tube is just one of the many features of the room, but it is a cornerstone of what makes the Snoezelen Room so effective.

Outside of the Snoezelen Room, the world can sometimes be chaotic, but inside of it, we can control and adjust the sensory environment for the students, providing the opportunity to relax and regulate, to help the students be their most wonderful selves. We will need your help to make this a reality for our students at Chileda.

Snoezelen at Chileda

Want to find out more about Snoezelen rooms?

Check out these links for more information.

My Chileda Story – Nick

By Tina M
May 17th

Submitted by Nick Maczek

I am a stepfather to two children on very different ends of the Autism spectrum.

My stepdaughter is still able to live at home. Her brother, on the other hand, cannot.

I was fortunate enough to have the choice to be a part of this madness. My wife, however, was forced into this. It has been harder watching what the struggles have done to her than actually dealing with the behaviors and other headaches. Mom has had to make some very difficult decisions. I have been with her through them all, but they all had to be her own decisions as a mom.

I was there when we had to first put our boy in the behavior hospital.

I was there the second and third etc. I was there when she decided to try meditation. I have been there through countless hours of therapy. I was there when we made the move to an alternative school.

Those decisions were extremely hard on mom. She, however, made it through them like a trooper.

Then came the decision to put him in residential. That was tougher than all the other decisions combined. Fortunately, at that time, he was only an hour or so from home.

While he was there, we would visit him every weekend, but our taking him out was very limited.

He got kicked out of one school while there. He got to the point that we were called several times a month that he was sent to the ER, either from aggression toward others, or self-injury.

Then came the call that my wife feared was coming, we were being told the residential facility was no longer able to keep him. We were fortunate that they kept him until another placement was found. It took over six months and over 60 rejections. Not one place in Illinois would take him.

Then a miracle happened.

We were told that a place in La Crosse, Wisconsin was interested in meeting him. Mom was both overjoyed and distraught at the same time. We were glad there was someplace out there for him, but the idea of being 4 hours away was heartbreaking. This was going to mean far less visits, and a hotel room, and a very rough ride with his sister who doesn’t like long car rides.

We took a ride up for a tour. The first thing we saw, pulling up, was a child being restrained, then we saw another inside. You may think this would be discouraging, but we were thinking just the opposite. We could see that the children were not being harmed in any way. We also instantly thought this is a good sign, they are used to dealing with kids like our son.

We were highly impressed with the tour. We decided right then to give this a chance.

Chileda student swinging with his teacher
Zack at Chileda with his teacher, Jessa

Thank God we said yes to this little place called Chileda.

In a very short time they began getting him off of some of his medications. We began taking him on overnights in hotels. We were finally getting our sweet boy back. The four hour ride became very tolerable. The quality of our visits had increased tenfold.

The smiles on his mom’s face melted my heart.

Thank you so much, Chileda, for all you do for our boy and for all the kiddos there. Thank you for giving us our Zacky back.

Learn more about Chileda and our services:
http://chileda.org/how-we-help/

Gaining Experience in Occupational Therapy While Working at Chileda

By Tina M
May 1st

Chileda employee at the UW-La Crosse Job Fair

Congratulations to Chileda employee, McKenna Keach, on your acceptance to the Master’s of Occupational Therapy program at the University of Wisconsin-La Crosse.

“While I was applying for graduate schools, it became clear to me there were many ways I have helped the children at Chileda grow, but even more ways in which they helped me grow as a future Occupational Therapist. Assisting students to overcome barriers in their lives, so they are able to participate in the activities they enjoy, has sparked an unwavering aspiration within me to help others in need through OT. I am very excited that I get to stay in La Crosse for graduate school, and continue to work with the awesome kiddos at Chileda who helped affirm this career path for me!” ~McKenna Keach

McKenna, all of us here at Chileda are proud of everything you have done for us and accomplished in your academic studies!

Information on the Occupational Therapy program at UWL:

https://www.uwlax.edu/grad/occupational-therapy/

Join the Chileda team

Start gaining valuable experience in your career in OT, Psychology, Behavioral Health, Special Education, Physical Therapy, Human Services, Therapeutic Recreation and more!

Employment

Craft Projects with Purpose

By Tina M
April 11th

Graphic with paint brush and scissorsBy Alicia Zielke, Certified Occupational Therapy Assistant at Mayo

Each week students at Chileda participate in various Occupational Therapy groups. From an outside lens, some of these groups may appear to be a simple arts & crafts project for children with special needs, but these activities are so much more.

Arts & crafts projects include many components that allow our students to further develop their fine motor coordination, executive functioning and social skills. Within a project children have the opportunity to practice scissor skills, lacing, drawing/writing and sequencing skills. Actions such as squeezing a glue bottle and pasting pieces together can increase hand strength while also providing sensory input. Sharing materials with others may require waiting and turn taking.

For some projects each “part” of the final product can be created by a different individual, allowing students to work together to create something great! However, if presented with a project too challenging a child may become frustrated, behaviors may occur or possibly refusal to participate. For this reason it is important to provide each child with the “just right” challenge.

Here are some tips to adapt your craft projects to help your child with special needs learn while optimizing success and fun at home.

  • Use Supplies with a Variety of Sizes
    Use crayons, markers, paint brushes etc. with a variety of sizes. For children who are still developing their grasp and hand strength, a larger utensil may be easier to use.
  • Incorporate Your Child’s Interests
    Incorporate your child’s interest, choose crafts or materials with their favorite animal, color, movie or superhero.
  • Decrease the Number of Steps
    For example, if a project requires 3 circles to be cut out, try cutting out 2 and asking your child to cut out 1.
  • Limit Wait Time
    Try to have materials and supplies available & prepared before starting a project.
  • Limit Choices
    For example, only present 2-3 options of colors or materials at a time. Being offered too many options can be overwhelming.
  • Ask Questions
    Allow your child to develop problem solving and creativity by asking questions throughout the task. For example, “do you think we will need more paint?” versus “we’re out of paint, let’s use more.”

My Chileda Story – Melissa and Jack

By Tina M
March 7th

My son Jack was at Chileda for nearly four years. He came home September 24th, 2017.

Jack gained so much during his time at Chileda and the number of excellent staff made such a difference in his life.

A week doesn’t go by where he doesn’t talk about Eric or Tim or Tyler or some other staff member that he looked up to. There were so many excellent staff that went above and beyond and realized that what they were doing was more than just a job. They were investing in someone’s life and truly making a difference. I believe Chileda’s success with special needs children is due to this fact.

Some things Jack learned were, how to cook basic food, how to stay on a schedule, how to respond in social situations and how to express his feelings. I’m amazed at how Jack will tell me how he is feeling about something and I just feel this rush of gratitude that a boy who never said how he felt has learned this important skill.

my chileda story
Melissa and Jack

What I know to be true is that Jack would not be successfully living at home without the life skills he learned during his time at Chileda.

Chileda is a very special place that treats children with disabilities in a hopeful and respectful manner. I am truly, forever grateful for all that was done for Jack while he was at Chileda.

Sincerely,
Melissa Overbo

Autism Awareness T-Shirts for Sale

By Tina M
March 1st

Join Chileda on April 2, 2019 as we wear t-shirts to promote Autism Awareness Day and Month!

Celebrate with us by purchasing your own shirt to wear on April 2 and throughout the year!

Please submit your payment and order forms by Monday, March 11, 2019.
Click here to download the order form.
Shirts will be available for pick-up at Chileda (stay tuned for pick-up details).

Questions? Contact Tina at tinam@chileda.org or 608-782-6480 ext. 352.

Taking Children with Special Needs Out to Eat

By Tina M
February 13th

Tips for eating out with children with autism and other special needs

By Terri Gowey, MS, BCBA, LBA
Chief Operating Officer at Chileda

Going out to eat at a restaurant for any family can be challenging. Having a child with Autism, ADHD, and other special needs can add extra challenges. Eating out at a restaurant requires many skills including waiting, choosing and communicating the meal choice, sitting through a meal, appropriate voice volume, and general table manners. Some children may also have sensory aversions to foods, crowded environments, and noises.

Tip 1 – Practice at Home

  • Eat together as a family during meal times.
  • Sit a few minutes before the meal to practice waiting.
  • Wait to leave the table until everyone is finished eating.
  • Use communication tools at home that will be used in the community for ordering. Helpful tools are Picture Exchange Communication Systems (PECS), iPad communication systems such as Proloquo2go or Tech Talk, Voice Output Devices, and Choice Boards.
  • Have a “restaurant night” at home and create a menu to practice ordering. Using a visual schedule that includes each step may be helpful for some children. For example: stand in line, order meal, sit down, wait for meal, eat meal, throw garbage on trays away, go to vehicle.

Tip 2 – Plan Ahead

  • Call the restaurant ahead of time for a reservation or to identify times that aren’t as busy.
  • Pick a day and time that is less busy, especially if this is your first time to the restaurant.
  • Start at a restaurant that your child will have the most success at based on their skills. Some children may do best starting at fast food restaurants because of the shorter wait times.
  • Let the manager know if you need any special accommodations (special diet, seating to avoid sensory aversions, etc.).
  • Become familiar with the restaurant (e.g. bathrooms & exits) prior to visits.

Tip 3 – Go Prepared

  • Bring items that will help decrease sensory overload and keep your child busy while waiting. Examples include sound muffling headphones, favorite toys, puzzles, iPads, etc.
  • Bring any communication tools or schedules that your child has practiced using at home.
  • Review expectations prior to going to the restaurant. Pictures of the restaurant and visuals of another child or character ordering, waiting, and eating at the restaurant can be used to create a booklet to read to your child, also called a social story. At Chileda, social stories are used to introduce changes, teach skills, and prepare for upcoming events.
  • Provide specific praise when your child is doing what is expected, for example, “You are doing a great job sitting nicely and waiting for your food.” Bring preferred items or small rewards (reinforcers) if needed.

Even with the best preparation and planning things don’t always go as expected. You may need to go take a break in a quiet environment or be prepared to leave quickly. Don’t be discouraged if things don’t go as expected. With more exposure and practice your child will gain the skills to eat out. If you are a restaurant owner, waitress, waiter, or eating out with your own family and a child yells loudly, paces the room, stands up and spins, or takes food off your plate, please be patient. This child is working on learning these skills. A smile, offering a helping hand, and just being understanding can make a world of difference for the families, caregivers and child.

This article was featured in the Winter 2019 issue of
Coulee Parenting Magazine.

chief operating officer at ChiledaTerri Gowey is a mother to three children, the Chief Operating Officer at Chileda in La Crosse, and an expert in planning ahead. She holds a Master of Science degree in psychology with an emphasis in Applied Behavior Analysis and is a Board Certified Behavior Analyst (BCBA) and Licensed Behavior Analyst in Wisconsin. She has over 18 years of experience working with children with cognitive challenges and extraordinary behavioral needs. (more…)